Patient Engagement

One of our Core Values is to partner with patients in all that we do.

We ensure that our priorities and our Board and Advisory Board include patients, all our grant review committees include patients, and we require and steward patient engagement in all the research projects that we support.

Multi-Modal Patient Engagement

Patient and Stakeholder Engagement

We develop culturally tailored research toolkits and educational materials to support research engagement. We are proud of our recent work with Chinese-speaking patients and families, funded by the Patient-Centered Outcomes Research Institute.

Chinese-speaking vascular engagement project

What We Do

Patients as Research Partners

We meaningfully involve patients in research design and implementation.

We have 8 ongoing research projects driven by patient-identified priorities.

Patient Advisory Leadership

We facilitate patient advisory task forces that directly influence clinical guidelines and research priorities.

Community Support Network

Our partner PAD Walking, Exercise, and Wellness Support Facebook group provides a community for patients to receive support, education, and resources.

PAD Walking, Exercise, and Wellness Support Facebook group

Community Health Screening

We engaged 1000+ community members through our hands-on vascular health screening initiative, CHAMPIONS. This includes providing extensive educational resources to screening participants.

CHAMPIONS Initiative

Educational Resources

We have 25+ flyers and 10+ interactive educational modules. These are available to the public for free. Patients and clinicians have reviewed and advised on all materials, ensuring accuracy and lay accessibility.

Resource Library

Culturally Responsive Education

Our multi-language, culturally responsive educational approaches offer templates for national campaigns.

Resource Library

Community Engagement Initiatives

Our community engagement initiatives are at the heart of our mission, addressing health disparities and improving vascular health outcomes in underserved populations.

Below are the current community engagement initiatives.

Health Equity: For Patients, With Patients

PAD Facebook Project: Empowering Digital Support Networks

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Chinese-Speaking Vascular Patient Engagement

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Cardiovascular & Metabolic Disease Patient Engagement

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Community-Based Microgrants: Empowering Local Action on Vascular Disease

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Patient Engagement Toolkits

Part of our Vascular Health Education Academy, the Foundation to Advance Vascular Cures has developed evidence-based toolkits to facilitate patient engagement in research.

This work has been done in partnership with patients and caregivers who are uniquely positioned to design the user experience for these resources. Check out these toolkits to learn about strategies and lessons learned in engagement of patient partners.

Recruitment of Patient Partners (Flyer)

Patient Engagement: Advisors in Research (Flyer)

Patients Participating in Research as Advisors (Course)

Patients can play a powerful role in research as advisors. Living with a disease or health condition every day gives you valuable insight into what it’s like to manage symptoms, take treatments, and make healthcare decisions. Engaging in research as a patient in an advisory role not only enhances personal health education but also serves as a powerful avenue for advocacy that drives innovation and improves outcomes for future patients.

A Toolkit for Patients to Engage in Research: CLTI Engagement as a Case Study (Course)

The Foundation to Advance Vascular Cures has developed evidence-based toolkits to facilitate patient engagement in research. The toolkits feature a case study on Chronic Limb-threatening Ischemia (CLTI) and how patient partners can be engaged in research to improve outcomes for all.

Engaging Patients in Research: A Toolkit for Vascular Health (Course)

Check out these toolkits to learn about strategies and lessons learned in engagement of patient partners. One toolkit is aimed at patient partners, to provide valuable information on what research engagement looks like. One toolkit is aimed at researchers and other stakeholders, to help them in planning and implementing patient engagement in their research.

An Overview of Medical Research and Engagement (Course)

This module will provide you with an overview of research as it relates to medical discovery and patient outcomes. Later in the module, we’ll discuss how patients and caregivers can engage in research to improve the process and findings.