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patient voices

Patient Voices

Medical information can explain vascular disease. Patients and caregivers can explain what it is like to live with it.

Their experiences can help others recognize symptoms, prepare for medical appointments, understand treatment decisions, and feel less alone.

Foundation to Advance Vascular Cures brings patient and caregiver perspectives into our educational resources, research, programs, and efforts to improve vascular care.

Hear directly from patients and caregivers

Explore stories about recognizing symptoms, living with vascular disease, recovering from procedures, preventing limb loss, navigating treatment decisions, participating in research, and supporting a loved one.

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影响故事

Story 1: (Shanon, Casa Colina patient)

Education is Everything 

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For one patient living with diabetes, the biggest obstacle wasn’t simply taking medication. It was understanding why she was taking it. She wanted to know what her medications did, how they affected her body, what side effects to expect, and how treatment fit together with diet, exercise and the choices she made every day. This education helped her manage her diabetes, and to prevent the onset of PAD. That changed when she enrolled in a diabetes education program. Suddenly, managing her health wasn’t something that was simply happening to her. She had information. She understood the role of her medications. She learned how food and exercise affected her diabetes. She began monitoring her glucose and taking a more active role in her care. And she saw results. When she entered the program, her A1C was 11. Within roughly six to eight weeks, she had brought it down to 9. But perhaps the biggest change wasn’t a number. It was confidence. “The information has empowered me.” For her, education became a tool for prevention—and a way to take ownership of her health before vascular complications had the opportunity to take more from her. Her experience is an important reminder that diabetes management is also vascular prevention. People living with diabetes face a higher risk of peripheral artery disease, or PAD, which can reduce blood flow to the legs and feet and, if missed, lead to wounds, limb loss and other serious complications. Education gives patients a chance to act earlier, before vascular disease progresses to a crisis.

Story 2: (University of Michigan/The Ohio State University)

Latana’s Story 

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Latana Wolf knows what it means to fight for a limb. Her journey with peripheral artery disease began after a foot problem revealed something far more serious. A piece of glass had become embedded in her foot without her realizing it because she had lost feeling there. When vascular specialists became involved, they discovered peripheral artery disease. What followed was a long road: multiple procedures, multiple amputations and repeated efforts to restore blood flow. Eventually, Latana was told that amputation was the only option. She wasn’t ready to accept that. She traveled to another state seeking another opinion and found a physician willing to keep trying. The interventions that followed did not save her leg forever. In November 2024, after years of treatment, her leg was amputated. But they gave her something Latana considers enormously valuable: another year with her leg. Looking back on the surgeries and difficult recoveries she endured trying to preserve her limb, she asks herself whether it was worth it. Her answer is simple. “Yes.” Today, Latana’s goal is to restore enough blood flow in her remaining leg to walk again with her prosthetic. And she has a clear message for the medical community: patients deserve options, communication and a care team willing to work with them before amputation becomes inevitable. Her story also reveals how complicated vascular disease can become when care is fragmented. Diabetes, vascular disease, wounds, medications, insurance barriers and multiple specialists can leave a patient carrying the burden of connecting the pieces. Latana’s experience reminds us why earlier detection and coordinated, patient-centered vascular care matter. Saving a limb is not always possible. But listening to the person whose limb is at stake should always be.

Story 3: (Wael, UCSF)

A Young Patient Searches for Answers 

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He was in his mid-20s, active and playing basketball, with no history of surgery and little reason to imagine that vascular disease would become part of his life. Then he felt what seemed like a cramp in his calf. He dismissed it at first. But the discomfort grew. His leg became increasingly fatigued. He went from doctor to doctor searching for an explanation, but the answers never quite fit. Medication was suggested. A musculoskeletal problem was considered. Still, he knew something wasn’t right. Nearly two years passed before a new primary care physician recommended a vascular evaluation. Finally, there was a clue: disease affecting blood flow in his femoral artery. Then came the night he couldn’t ignore his body anymore. The pain had become so severe that he could barely sleep. He remembers repeatedly getting up and sitting in the bathroom, trying to numb the pain in his foot long enough to get another 15 minutes of rest. The next morning, he sought care. What began as a visit for pain became emergency surgery. A clot had traveled down his leg. In a matter of hours, a young man who had never undergone surgery was facing three incisions—and a diagnosis that would require lifelong attention. His experience changed how he listens to his body. Symptoms he once might have dismissed now mean something different. He asks questions. He monitors his health. He stays in close communication with his care team. And he wishes vascular disease had entered the conversation sooner. His story is a reminder that vascular disease does not belong to one age group or one “type” of patient. Warning signs can be missed, and delays in diagnosis can have profound consequences. But his story is also about something equally important: trust. For patients to seek care early, they have to believe they will be heard. They need clinicians who listen, explain and see the person—not simply the problem that needs to be solved. Earlier recognition matters. So does making patients feel safe enough to come through the door.

照护者权益倡导系列

作为 PAD 意识宣传月的一部分,塔米和考特尼·莱辛格分享了她们照顾患有 PAD 的亲人的个人经历。

他们的故事向世界各地的护理人员致敬,并提醒我们,提高意识、早期干预和倡导可以挽救生命。

信守承诺

Courtney Leitsinger 聚焦

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塔米·莱辛格聚焦

携手共创未来

2025 Vascular Health Step Challenge:
Why I Walk Wednesday Series

我们与血管外科协会 (SVS) 合作,我们的患者倡导者分享了他们保持活跃的动力以及他们支持 2025 年血管健康步数挑战赛的原因。

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加里·德·马塔斯

史蒂夫·汉堡

特里什·布朗

患者故事档案

浏览我们的患者故事档案,了解早期活动和社区成员的经验和见解。

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比克脚上有个伤口,一直不见好。

弗吉尼亚·马登差点中风

教会里的一次考验得救了

吉姆的生活

妮可不得不离开

大学

41岁时,基普差点丧命

朱莉的血管正在缓慢钙化

Group Hug Outdoors

Together, We Can 

Change Lives.

Your support fuels research, education, and hope for a healthier tomorrow.

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